Most of this comes from an email I just sent my sister. It is the first occasion I have written about the sate of my spirochetes in a while. I guess I unconsciously thought that giving them the "cold shoulder" would offend them so much they would just leave and clean the place up on their way out to get it spic-'n'-span. But to my dismay, it turns out that they have vowed, like the Chinese would, to fight for 1000 years if they need to. Bastards.
I have ignored the old Lyme updates, but this week has sucked so here we are, and here it still is…
I am basically sleepy all of the time. I also have a foggy brain at times (although it's debatable that I was foggy before this and now it's just exacerbated a bit
My spleen has been hurting for the past couple of days which is not pleasant. And with my two young boys waking up all night long – both of them this week – I have been very tired, very tired.
So I need to cut back life and rest more – somehow. I always have oodles of vacation time, and I will start there with scheduling half days and/or days off for a while. My spleen is telling me that this is a good idea. Well my wife also tells me this, but my spleen is "speaking" in a much harsher voice today.
What's bothersome is that for other illnesses that require antibiotics, you take them for a few weeks and then it goes away. With this one that does not seem to be the case at all. It recurs. Some days its OK and you think you are rounding the bend, and then BAM! the spleen hurts and I am dizzy all over again as if treatment never started.
But I am not ruling out Chronic Epstein-Barr (CEBV) yet. I know the initial blood panel for it came back negative, but man … it's the spitting image of it in a lot of ways.
The woman who watches the nursery at our church said that her daughter had EB and had all of the same symptoms I have right now: exhaustion (chronic fatigue – let's call the spade a spade), big-ass spleen and liver (the latter not from the "illness" of my family heritage which is drinking it to a robust size), occasional nausea and decreased appetite, etc.
Case in point. I have always said I have never felt as awake since I had that really serious case of mono when I was 8. EB is the root cause of chronic cases of mono. So my intuition is buzzing a bit after talking to her – especially now that my spleen hurts again.
So we will see how things go today, but I might just be making an ER trip this weekend to have it checked out. Not something to mess with at all you know?
I do have some time off coming up here to visit with family – hopefully very low-key and guilt free times there. I also need to get some kind of a life plan together.
My sisters and I are all my father's kids. We work too much and are too motivated to do everything for everyone else but ourselves. Overall I have had a good year with looking out for my health though. Had a couple of wellness visits, saw a psych for the first time ever to get my mood right, etc. This was unexpected and I need to figure out how to move forward with it as a permanent resident so I am not being cavalier with it through ignorance (my stance the last two months – take the pill and move on), and not letting its effects totally wreck my life at the same time by not taking care of bid-ness when it needs to be taken care of.
My sister has rheumatoid arthritis. Very similar to Lyme and often a misdiagnosed case of Lyme. There you need to rest on a regular basis or the RA starts to act up. Rest now, or it just snowballs into a serious problem. Same here I guess. Rest when I don't feel the need to, so that I don't really need to rest via "pass out in exhaustion" later.
So the moral is that I have time coming where I can start putting together a life plan of sorts since this does not seem like something that goes away like strep throat.
If anyone says "Doxy will fix it" to you they are lying. It does not – at least right off. It goes deeper, and unfortunately we do not know how deep it really goes or how to dig it out permanently. All of this because of a little near microscopic tick in the Wal-Mart mulch. My cypress trees had better never die!
Two circles and a snap!
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Thank you.
Thank you.
Sorry to hear about your illness. I will keep you in my prayers this weekend.
Thank you for your very thoughtful comments at my Blog of the Grateful Bear. I've added your blog to my blogroll, and I look forward to following your blogposts.
blessings ~
Grateful Bear
Thanks Bear!
Sorry to hear about your illness. I will keep you in my prayers this weekend.
Thank you for your very thoughtful comments at my Blog of the Grateful Bear. I've added your blog to my blogroll, and I look forward to following your blogposts.
blessings ~
Grateful Bear
Thanks Bear!